Communicating about eating disorders online

We are keen to hear from young people with different experiences of posting or viewing posts about eating disorders on social media.

Who can take part?

If you are:

·      Aged 16-25

·      Living in the UK


·      Have experience of eating disorder(s) or disordered eating behaviours, whether you have a diagnosis or not. (Find out more about eating disorders here).

We would like to hear from people with diverse experiences. You might relate to the following:

·      You have been worried about money or have experienced poverty.

·      You identify as culturally or ethnically diverse.

·      You live or have lived in a rural area.

·      You feel that your gender isn’t well-represented in conversations about eating disorders.


Sharing your experiences will contribute to understanding the role that social media plays in experiences of eating disorders and will help to shape support for young people in the future.

What the project involves

Participating in this study will involve:

·      Completing a consent form (with confirmation that you have informed your parent/carer/guardian if you are aged 16 or 17)

·      An online interview of 45-60 minutes

·      Sharing and discussing some social media posts you have made (if you feel comfortable).

Interested or would like to ask questions?

Please get in touch with Dr Tamsin Parnell via email at

More research participation

[RECRUITMENT CLOSED] FREED-Mobile (FREED-M) study: Research Volunteers Wanted!

Do you have problems with your eating behaviours or concerns about your weight? Are you unsure whether you need help? We are exploring if the use of online resources are helpful for young people in deciding whether to seek support for their eating problem

Find out more

2-year Research Fellow job opportunity: UCL [POSITION FILLED]

University College London is looking to appoint a research associate to join the EDIFY project, to lead on data analysis of cohort studies exploring risk and resilience factors for the development of eating disorders.

Find out more

Research Participants Needed!

Survey of people with eating disorders on the cost-of-living crisis, food insecurity and poverty: Can you help us understand how people with eating disorders experience the ongoing cost-of-living crisis in the UK?

Find out more

The RaISE Trial: A feasibility RCT of Intermittent Theta Burst Stimulation for Young People with Anorexia Nervosa

Have you undergone a full course of treatment for anorexia that has not helped you recover? Are you interested in neuromodulation therapies? Check out the RaISE trial of non-invasive brain stimulation!

Find out more

We want to hear your STORY – Join our new research study!

Are you between 16 and 25 years old and have an eating disorder or think you may have one? Then we invite you to take part in a 12-month-long study that explores the diverse experiences of young people with eating disorders and how they recover from them.

Find out more

Turning points in eating disorders recovery among diverse individuals/ carers using adapted photovoice

We would like to hear from you if you would like to share the turning points or periods in you or your loved one's recovery, and if there is any significant person/place/object associated with that period.

Find out more

LENS: Lived Experiences Narratives and Scenarios of Eating Disorders

Are you aged 16-25 and have experience of eating disorder or disordered eating? We are keen to hear from young people with different experiences!

Find out more

[CALL CLOSED] Call for Artists in Residence

We are recruiting artists-in-residence to work with us

Find out more

Express your Experiences of Eating Disorders or Disordered Eating

For a research study at the University of Nottingham (part of the EDIFY study) please share with us your own unique experience expressed in any way you want.

Find out more
Need help, support or info?

Need help, support or info?

The sooner you seek support, the sooner things can start to get better. We can help you find the right option for you.