LENS: Lived Experiences Narratives and Scenarios of Eating Disorders

About the LENS project 


Who can take part 


If you are … 

·       Are aged 16-25 


·       Have experience of eating disorder(s) or experienced eating disorder behaviours, whether you have a diagnosis or not. (Find out more about eating disorders https://www.beateatingdisorders.org.uk/get-information-and-support/about-eating-disorders/types/ ) 


We are keen to hear from young people with different experiences. You may relate to one or more of these:


·       Have you ever been worried about money, experienced poverty or been impacted by rising cost of living? 


·       Do you identify as culturally or ethnically diverse? 


·       Maybe you live or have lived in a rural area? 


·       Do you feel your gender isn’t represented in conversations about eating disorders? 


Sharing your experience will make a valuable contribution to shaping a better understanding of eating disorders and ways in which support for young people can be improved in the future.   



What the project involves 


We are organising two sessions and you can choose to take part in one or both of these: 


1.     One to one interview (in person or online) – working with two researchers who will support you to share your individual experience.  This will help us to capture the unique experiences of young people who are experiencing or have experienced eating disorders and learn about individual experiences of seeking help and access to support.  We also want to learn about any impact ethnicity, living rurally, resource insecurity or being LGBTQ+ may have on young people’s experiences.  

2.     Group workshop – working with other young people, researchers and Youth Advisors working on LENS to co-design ideas and recommendations for improving experiences of accessing care and support.  


Before taking part, we will invite you to complete a ‘Participation Passport’ to help us understand how your experiences relate to the project; how we can best support you to participate; and how you would like to share your experience. This can be completed online or by post, whichever you prefer. 




If you have any questions about the project or would like to find out more about getting involved, please contact Fiona via email at f.stephens@gsa.ac.uk 


More research participation

[RECRUITMENT CLOSED] FREED-Mobile (FREED-M) study: Research Volunteers Wanted!

Do you have problems with your eating behaviours or concerns about your weight? Are you unsure whether you need help? We are exploring if the use of online resources are helpful for young people in deciding whether to seek support for their eating problem

Find out more

2-year Research Fellow job opportunity: UCL [POSITION FILLED]

University College London is looking to appoint a research associate to join the EDIFY project, to lead on data analysis of cohort studies exploring risk and resilience factors for the development of eating disorders.

Find out more

Research Participants Needed!

Survey of people with eating disorders on the cost-of-living crisis, food insecurity and poverty: Can you help us understand how people with eating disorders experience the ongoing cost-of-living crisis in the UK?

Find out more

The RaISE Trial: A feasibility RCT of Intermittent Theta Burst Stimulation for Young People with Anorexia Nervosa

Have you undergone a full course of treatment for anorexia that has not helped you recover? Are you interested in neuromodulation therapies? Check out the RaISE trial of non-invasive brain stimulation!

Find out more

We want to hear your STORY – Join our new research study!

Are you between 16 and 25 years old and have an eating disorder or think you may have one? Then we invite you to take part in a 12-month-long study that explores the diverse experiences of young people with eating disorders and how they recover from them.

Find out more

Turning points in eating disorders recovery among diverse individuals/ carers using adapted photovoice

We would like to hear from you if you would like to share the turning points or periods in you or your loved one's recovery, and if there is any significant person/place/object associated with that period.

Find out more

Call for Artists in Residence

We are recruiting artists-in-residence to work with us

Find out more

Communicating about eating disorders online

We are keen to hear from young people with different experiences of posting or viewing posts about eating disorders on social media.

Find out more
Need help, support or info?

Need help, support or info?

The sooner you seek support, the sooner things can start to get better. We can help you find the right option for you.